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Know the symptoms. Know your whakapapa: Stomach Cancer Awareness Month 2026

Every August, Gut Cancer Foundation raises awareness of stomach cancer, including its risk factors, symptoms and the urgent need for earlier detection.

Our key areas of focus for Stomach Cancer Awareness Month 2026 include:

  • improving understanding of stomach cancer symptoms, risk factors and the importance of early detection

  • highlighting the connection between Helicobacter pylori (H. pylori) infection and stomach cancer risk

  • increasing awareness of hereditary stomach cancer, including CDH1 gene mutations and the importance of understanding whakapapa

  • sharing the experiences of patients and whānau affected by stomach cancer

  • connecting patients, whānau and carers with free, specialist support and trusted information

  • promoting access to the Stomach Cancer My Care KIT

  • highlighting research, clinical trials and studies aimed at improving prevention, diagnosis, treatment and outcomes.

More than 400 people are diagnosed with stomach cancer in Aotearoa New Zealand each year, but the burden is not shared equally. Māori are three times more likely to develop the disease than New Zealand European communities, reflecting a significant health inequity.

Around 47% of stomach cancers are diagnosed in an emergency setting, often after the disease has reached a later stage. Earlier detection is therefore critical, with greater awareness of the symptoms, risk factors and importance of whānau health history helping to improve outcomes.

Recognising the symptoms of stomach cancer

The symptoms of stomach cancer can be subtle, vague and easily mistaken for other conditions. They can include:

  • extreme tiredness

  • a painful or burning sensation in the abdomen

  • heartburn or dyspepsia

  • black-coloured stools

  • unexplained weight loss

  • feeling full after eating only a small amount

  • nausea or vomiting

  • loss of appetite

  • swelling or pain in the abdomen

  • low iron levels or anaemia.

Experiencing one or more of these symptoms does not necessarily indicate stomach cancer. However, new, persistent or unexplained changes should be discussed with a GP, particularly when they are unusual for the individual.

Our downloadable Stomach Cancer Risks and Symptoms Checker can help people record symptoms and prepare for a conversation with a healthcare professional.

H. pylori and stomach cancer risk

Helicobacter pylori, more commonly known as H. pylori, is a bacterium that can infect the stomach lining. Long-term infection can cause inflammation and precancerous changes and is a major cause of stomach cancer.

Māori and Pacific peoples have higher rates of H. pylori infection than New Zealand Europeans, contributing to the inequities seen in stomach cancer diagnoses and deaths in Aotearoa. Risk may also be increased when a close family member has tested positive for H. pylori.

Updated H. pylori guidelines are being developed for health professionals, providing further guidance on identifying, testing and treating people who may be at increased risk.

Health professionals: View the updated H. pylori guidelines here: https://www.nzdoctor.co.nz/article/educate/how-treat/helicobacter-pylori

Gut Cancer Foundation also welcomes recent news from the Malaghan Institute of Medical Research. The Institute has entered a global collaboration with the International Agency for Research on Cancer, the cancer research agency of the World Health Organization, to strengthen stomach cancer prevention and control through H. pylori research.

The collaboration will include work addressing antibiotic resistance, developing screen-and-treat strategies, and sharing scientific knowledge and methods internationally.

Read more here: https://www.nzdoctor.co.nz/article/educate/how-treat/helicobacter-pylori

Whakapapa and hereditary stomach cancer

Whakapapa can provide important information about stomach cancer risk.

Hereditary Diffuse Gastric Cancer is a rare inherited condition most commonly associated with a mutation in the CDH1 gene. A CDH1 mutation can be passed from one generation to another and increases the risk of developing diffuse-type stomach cancer.

New Zealand has a disproportionately large number of HDGC because the CDH1 gene has been found to be carried in a number of whānau Māori. Current guidance recommends that the whānau of any Māori person diagnosed with diffuse stomach cancer be encouraged to consider genetic testing, regardless of whether there are other known cases of stomach cancer in the family.

Understanding whānau health history and sharing it with a healthcare professional may help identify whether genetic counselling, testing or surveillance should be considered.

Learn more about hereditary stomach cancer and the CDH1 gene: https://www.gutcancer.org.nz/hereditary-stomach-cancer/ 

Sharing the realities of stomach cancer

Throughout Stomach Cancer Awareness Month, Gut Cancer Foundation is sharing personal journeys from patients and whānau whose experiences demonstrate why symptoms, risk factors and whakapapa must be taken seriously. Gut Cancer Foundation is deeply grateful to:

  • Amy* and her boys, whose journey demonstrates the importance of recognising hereditary diffuse stomach cancer within whakapapa and advocating for appropriate genetic testing

  • Carl, who shares how severe fatigue and anaemia led to his diagnosis, despite experiencing few obvious stomach symptoms

  • Jess, who has shared the story of her brother Chris, who died from a rare cancer in his stomach lining at just 37

  • Tara and Marty, who share their experience of a diagnosis following persistent reflux, unexplained weight loss and falling iron levels

  • Rachel and Mary, whose difficult journey to an H. pylori diagnosis began when Mary was only 14.

By speaking openly about their experiences, they are helping others recognise possible warning signs, understand potential risks, advocate for further investigation and feel less alone. We are so grateful to these patients and whānau for sharing their journeys.

Read their personal journeys on our Stomach Cancer Awareness Month page.

Dedicated support for patients and whānau

Gut Cancer Foundation’s free, nurse-led telehealth support service is available for people affected by stomach and other upper GI cancers.

Our support nurse can help people understand what may happen following a diagnosis, prepare questions for their medical team, navigate the health system, access trusted information, and manage the practical effects of cancer and its treatment.

The service is available to:

  • people diagnosed with upper gastrointestinal cancers, including stomach, oesophageal, pancreatic, liver, biliary cancers

  • whānau and family supporting people with upper GI cancers

  • people with related conditions or high risk factors for upper GI cancers

  • people concerned about upper GI cancer

Patients, whānau and carers can refer themselves for support, while healthcare professionals can refer patients or carers directly to the service.

Refer yourself or whānau for support: https://www.gutcancer.org.nz/refer-myself-or-whanau

Refer a patient for support: https://www.gutcancer.org.nz/health-care-professional-referral

My Care KIT for stomach cancer

The Stomach Cancer My Care KIT is now available to support patients, whānau and carers throughout the stomach cancer journey.

Created with evidence-based information from stomach cancer experts, the KIT helps people understand a diagnosis, explore treatment options and navigate the different stages of living with stomach cancer.

It is available free as either a digital download or printed KIT, with free shipping throughout Aotearoa.

Order a Stomach Cancer My Care KIT: https://www.gutcancer.org.nz/shop/#category=44594&gsc.tab=0

Supporting stomach cancer research and clinical trials

Alongside awareness and patient support, Gut Cancer Foundation funds research, clinical trials and studies that aim to improve understanding, treatment and outcomes for people affected by stomach cancer.

Current donor-supported projects include research exploring Māori perspectives on the use of living tissue models, as well as studies and trials relating to treatment, chemotherapy side effects and more personalised approaches to cancer care.

These projects include:

  • Understanding Māori Perspectives: Using Living Tissue Models

  • Monitoring Cardiotoxicity from 5-FU Chemotherapy

  • THYmine2

  • APEC

  • TOPGEAR

Learn more about the stomach cancer trials and studies supported by Gut Cancer Foundation donors: https://www.gutcancer.org.nz/projects-our-donors-support/#stomach

Supporting Stomach Cancer Awareness Month

Individuals, whānau, workplaces, healthcare professionals and communities can support Stomach Cancer Awareness Month by:

  • learning about stomach cancer, its symptoms and risk factors

  • downloading the Stomach Cancer Risks and Symptoms Checker

  • downloading and sharing awareness resources across whānau, communities, workplaces and healthcare practices

  • signing up for updates on stomach cancer research, funding, news and advocacy

  • donating to Gut Cancer Foundation to support stomach cancer research, awareness, advocacy and patient support.

Gut Cancer Foundation extends its sincere thanks to every patient, whānau member, healthcare professional, researcher, partner and supporter who has contributed to Stomach Cancer Awareness Month so far. Their willingness to share experiences, amplify trusted information and support this work is helping strengthen awareness and improve outcomes for people affected by stomach cancer across Aotearoa.

Support Stomach Cancer Awareness Month 2026: https://www.gutcancer.org.nz/projects-our-donors-support/#stomach



 

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